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NORD a 501c3 organization is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases. Conner is 7 but he went undiagnosed with Angelman Syndrome until he was 5 years old.

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His strength and determination is inspiring us to strive for a brighter future.

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Their Son Was About 6 Months Old When They Finally Got A Diagnosis Jake The Couple Was Told Had Pallister Killian Syndrome Or Long Island Medium Jake Zane

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Diagnosed With Pallister Killian Syndrome On December 4th 2013

Their Son Was About 6 Months Old When They Finally Got A Diagnosis Jake The Couple Was Told Had Pallister Killian Syndrome Or Long Island Medium Jake Zane

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